Hurrah! It’s my 10th
Anniversary and according to Google:
‘Traditionally, the 10th year
of marriage is marked with tin or aluminium. Both materials represent the
durability and flexibility needed to sustain a loving union.’
And oh my, have we
shown durability and flexibility between us. Not me and my wife of course, no I
mean, it’s ten years this weekend that my lifelong partner Crohns re- entered
my life, with a bucket full of Chinese wings and a blue light ride to that most
exotic of places, Wythenshawe hospital A&E
And that flare up
exactly ten years ago changed everything!
No more cut and shut,
chopping out the diseased part of the bowel, and then crack on with your life. By
2010 the medical profession, dealing with an ever rising occurrence of Crohns
disease, had worked out it was better to manage the disease with a whole new
raft of medications than hack away at the bowel.
And how I miss those
days of elective surgery, some days, I just want to get a knife and chop the
whole thing out myself and other days, it’s familiarity seems like an old friend
(that you never really liked). But no, this time round it’s all been about
treatments, since September the 28th 2010, I’ve tried, 6MP, Azathioprine, Infliximab, LDN, triple antibiotic therapy and the most effective of all the
treatments for me is a low residue, low fibre diet.
It’s still a journey.
One of those like when you climb to the top of the mountain, quietly
congratulating yourself, then you discover there’s another peak, and another
peak and another…………
But you know you just got to keep going, this time around, armed with IBDoc, which again has been such a useful tool in lock down, as I haven’t seen my consultant since last February, however, I have seven months of IBDoc data, so I’m comfortable with the wait. And as things are shaping up with the pandemic, it looks like we’re in for the long haul!
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